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“When I was a kid, I played football and rugby, but I spent more time in hospital than on the football field.
“I was so busy dealing with it, and it was hard.”
After leaving school, Mr Howard became head of sociology and special needs at Wilberforce College, Hull.
EDS makes joints hyper-elastic, and means people with the condition are more prone to falling over, hyper-extending their joints and ultimately breaking their bones.
Mr Howard, who has three children and 15 grandchildren, says the condition is still commonly misdiagnosed by doctors.
“The problem is doctors not knowing what to do,” he said.
“Nearly every time, doctors still do not know much about it and I have to explain what the condition is to them.
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It is still this way. I am an EDS Patient and am VERY TIRED of dealing with doctors egos and trying to be diplomatic when explaining my condition.